Conversations on disability, travel, family & art. Grab some coffee. stay for a while
You didn’t ask me to take on a cause. You didn’t ask me to decide to learn to run in my first trimester of pregnancy and raise $2,400 for the Leukemia and Lymphoma Society. Those of you within the Down syndrome community think that since it’s not about orphans and it doesn’t have “Down syndrome” [...]
Blogging is a lot like running, Really, seriously alike. I think they are soul sisters or something. Of course you can just focus on the tiny details like the fact that one is done while sitting on your ass and the other done while moving your ass and so, how could they possible be “soul [...]
I am running a half marathon on May 6 in honor of Oliver, a small boy with Down syndrome who is currently fighting leukemia. Please visit his Caring Bridge page – and lend his family support, your prayers and your love. You can also sign up for email updates on his progress and you can [...]
I am running a half marathon on May 6 in honor of Oliver, a small boy with Down syndrome who is currently fighting leukemia. Please visit his Caring Bridge page – and lend his family support, your prayers and your love. You can also sign up for email updates on his progress and you can [...]
I am running a half marathon on May 6 in honor of Oliver, a small boy with Down syndrome who is currently fighting leukemia. Please visit his Caring Bridge page – and lend his family support, your prayers and your love. You can also sign up for email updates on his progress and you can [...]
Having committed to running a half marathon for the Team in Training, I am faced with the reality of training myself to actually perform the run. This is the funny part, kind of. You see, many people say, “oh, I can’t run” and then they jog around a track like, 6 times. Or they say, [...]
Children with Down syndrome have a 15-20 times greater risk of developing leukemia than a child without that extra chromosome. This is likely due to the presence of a gene mutation – but the very presence of that mutation means that the child with Down syndrome is also more likely to respond positively to treatment. [...]
I miss this. The points of light as they hit the water The infinite joy of sky-meets-land at day’s start I always had this fantasy of me running on the beach, all fleet-footed, perhaps rather niftily forgetting that I am far from fleet-footed, can’t run and am at least 30 pounds overweight. But I can [...]
