Conversations on disability, travel, family & art. Grab some coffee. stay for a while
I had just finished changing Mack’s diaper and I was nursing him. Micah and Moxie had been watching a show on Netflix. There was a…stillness in the air. Since I am deaf, it’s the stillness that I rely on with Moxie – not the sounds per se. It’s the vibration in the air, and trust [...]
I’m sure you all remember that magical moment in which Target hired a boy with Down syndrome as a model, then Rick Smith (aka “Noah’s Dad”) wrote a post that went viral about how Target was so great, they were doing the right thing and not even making a big deal about it. Yeah? Do [...]
George Estreich’s super-fine book The Shape of the Eye has been picked up by a different publishing house and is now available in softcover, with a new cover and as I understand it, an extra chapter (Laura is now eleven!). This book is superb; not just superb as a memoir by a parent of child [...]
I feel the spirit of Ethan so strongly. I don’t like talking about it because it seems ripe for a trip to FruitLoop Land, but you know what? I do. I feel his spirit. I look at my daughter, Moxie Capricious, delightful, strong willed. Smart. Beautiful. Funny. With such a devoted, loving relationship with her [...]
A young man was killed almost 3 months ago. His death was ruled a homicide. The perpetrators got off with a hand tap because the man had Down syndrome. This is what we know. A man was killed. His death was ruled a homicide. The perpetrators got off with a hand tap because the man [...]
I think my story in and of itself is a plump one. Take your pick, but most of the facets are individually pieces that people will write long about – from the early years on the rural sheep farm to the car accident. My parents becoming Baha’i’s, then moving to the Fiji Islands. Growing up [...]
[repost from the Unknown Contributor - because she said it perfectly] It’s Not that Complicated, Is It? The Ethan Saylor case has dominated my mind, my heart, and my Facebook feed for a few weeks now. I have read just about everything news agencies, bloggers, and organizations have published on it. (Is your Facebook feed [...]
When a young man with Down syndrome is held down by 3 off duty police officers inside a movie theatre over his refusal to purchase a second ticket and he dies because of their actions, what does this say? When the largest national organization for Down syndrome meets with the Department of Justice and comes [...]
Robert Saylor was a young man with Down syndrome. He was held down by 3 off duty cops because he refused to leave the movie theater and didn’t have a second ticket for the second time he wanted to watch a movie. He was held down, handcuffed three times and died from being suffocated. They [...]
I woke up on the nauseous side of the bed this morning, World Down Syndrome Day. Micah came in, hacking and heaving, Mack was drenched in snot and Moxie is not only sick but is on some kick where she pushes me away and wants nothing to do with me. I want to tell her [...]
