Conversations on disability, travel, family & art. Grab some coffee. stay for a while
The original title of this post was “If You Don’t Get Depressed, Don’t Read This Post” because I was depressed when I first wrote it and felt like it should be from me – who suffers from depression – to you, who know what it’s about (because you know, you wouldn’t be reading it if [...]
So I’m sitting here with a sleeping Mac in my lap. I’m crying over him, big fat tears plopping all over his legs. I’m trying to figure out why exactly I’m so upset. The administrator’s parting comment over Micah reading Rumpelstiltskin (the book he brought along to read on his own during the meeting) rings [...]
Sooooooo…. the World Down Syndrome Day Committee changed their campaign from “Odd Socks” to um, “Lots of Socks”. I am frankly perplexed and mystified by this committee’s connection between socks and Down syndrome. I mean, really. What does a a cloth foot garment have in common with the presence of an extra chromosome? [...]
By now most of the internet knows that blogger Kelle Hampton caught some major flack for posting a full frontal of her daughter, Nella on instagram. If you don’t know about it yet, here’s an article from Today. While I personally think a full frontal of a child, any child, crosses the line, I do [...]
I understand the need – necessity even – of campaigns like ‘More Alike Than Different‘. We want others to see our kids as we do; bright and beautiful, a truth perhaps for all mothers. In the case of mothers of kids with Down syndrome, the urge is perhaps stronger as we know our kid is [...]
Proud Flesh, “exuberant granulation tissue” – the first stage in the creation of scar tissue. Proud flesh is for me, more aptly stated as anend rather than a beginning. Proud flesh, my scars. Proud flesh, my scars. Proud flesh, my scars. *** There comes to a point in life in which you see your Proud [...]
There, I said it. He really, really annoys me. He reminds me of the know-it-all in class who wouldn’t just raise his hand every.single.time with the answer; he’d jump up and shout it out – after he peeked in the answer book. It annoys me that after he spammed the hell out of the Down [...]
Many readers and Ds community members understandably wanted to know more about symptoms to watch out for in leukemia after my last post on this vile scourge. Mama Lisa stepped in with some tips: Signs and symptoms for leukemia… Ongoing feverSmall purple or red freckles on the torso, arms, or diaper area (also known as [...]
I’m feeling pretty vulnerable today. I am guest posting on Amy Julia Becker’s blog, Thin Places. She is running a series by women regarding their choices in prenatal testing – my contribution is I Regretted My Amnio. The post was an honest one and as such, I feel exposed and kind of raw – like [...]
Most all of you contributed last year to the Leukemia and Lymphoma Society last year, as a part of the run that I was doing in honor of Oliver. Do you remember that? I found out that I was pregnant shortly after committing myself to the endeavor and it was hell on earth a challenge [...]
